Celebrating 20 Years!!!!

Laughing at how much I look like my Dad with my bald head!

Laughing at how much I ook like my Dad with my bald head!

This month I celebrate 20 years cancer free!   I am so thankful to God that I am still here – a cancer survivor!

I think of all the things I would have missed:

  • Wedding and graduations of many of my grandchildren
  • Seeing my oldest daughter earned her Master’s in Education
  • Seeing my youngest daughter become an ordained minister in the Wesleyan tradition
  • The birth of my youngest granddaughter and several great grandchildren
  • All the many trips my husband and I have made exploring our great country
  • Perhaps most of all just the 20 years I have enjoyed life with my husband who is also my bff.

I kept a journal during the fight with cancer.  Every year I get it out and read it again.  Here are my thoughts from that journal during the first few days facing the battle ahead of me.

Day 1 – Cancer! A simple word describing a disease that other people get. Just a word. Until suddenly I hear the word as I get the results of my biopsy. Abruptly my whole world changes forever. Nothing will ever be the same again.

It all started when I found a lump in my left breast. Although I called and set up an appointment with my doctor, I told myself there was nothing to be concerned about. This would just be a benign tumor. Cancer would never happen to me! After examining me, my doctor assured me it was probably nothing. Cancer in the beginning stages, she told me, seldom hurts and boy did I hurt! It was probably a cyst. If so, they would insert a needle to remove the fluid, and all would be fine. Nothing to worry about.

Then why did she tell me not to leave until she had an ultrasound scheduled? Still, there is nothing to fear! Cancer happens to other people, not to me. I’ll grow old and die some day of a heart attack.

Day 2 – After the ultrasound the radiologist wants to speak to my husband and me. He tells us he is trying to get in touch with my doctor to recommend I have a biopsy as soon as possible. He tries to comfort us by saying that cancer is seldom painful in the beginning stages. I’m in so much pain, it’s probably just a benign tumor. If pain means no cancer, bring on the pain!

Day 9 – The needle biopsy is completed. It was supposed to be painless, but I have to have three shots before they can complete the biopsy. Lord, let it be good news.

Day 12 – It’s not good news. I have cancer. How can that be? Not me! I call my husband on his cell phone. He is coming to take me to lunch and when he answers the telephone, he starts chattering away, making nonsensical comments. I cut him off, “Honey, listen to me.” Now what do I say? How do I say that dreadful word? There’s no way to avoid it, no way to make it sound all okay. So, I just say it. “I have cancer.” His response is engraved in my memory. “I’ll be right there.”

Now I have to tell the kids. How do I tell my children their mother has – there’s that word again – cancer? The kids come hurrying over with their families. I can tell they struggle with the news. My two daughters who have never been at a loss for words when talking with me are now strangely silent. They seem to avoid even looking at me. How I long to take away their pain, but I am totally helpless. This is not like when they fell as little girls and scratched a knee. I can’t wash away the pain, can’t put a bandage and a kiss on it and make everything fine again. Cancer was never something we thought we would have to deal with. That happened in other families, not ours.

Day 13 – Finally, almost 24 hours after I get the news I have cancer, the kids go home and my husband runs an errand. I am alone at last to absorb the news. I take a bubble bath and as I relax in the warm water, the tears finally come. I cry and beg God over and over, “Please let me live! Please let me live!” Over and over comes this desperate plea.

I Asked for Two Years – I Now Have Nine Years

When I was 54 years old I was diagnosed with a very aggressive and advanced stage of breast cancer. My doctor said I had only a small chance of still being alive in ten years.

Ten years – that would put me into retirement age. At that time I planned to retire at age 62. So I figured if I could last ten years and retire at 62 that would give me two years to enjoy retirement with my husband.

For years I had worked a secular job which kept me busy with work Monday through Friday. My job was a very demanding job and often required overtime. When the weekend came I was really not free to enjoy time with my husband because he was a pastor. That meant that much of his weekend was involved with the church.

So I thought if I could just make it to those ten years, that would give me two years of retirement to enjoy more time with my husband.

That is what I asked for – “Lord, let me live to retire and give me two years to enjoy some quality and quantity time with my husband.”

As the time grew near for my 62nd birthday, I was thankful that I had made it eight years – but finances dictated that I needed to work until I was 65.

“Lord, let me live until I am 65 and give me two years of retirement with my husband.”

Well, obviously I made to 65. What is so wonderful is today I celebrate nine years of retirement. Nine years ago today I walked out of MidAmerican Energy Company for the last time. Still praying for those two years of retirement with my husband.

God has given me now nine years of retirement – and I am still going strong looking forward to many more years.

What I have been able to enjoy in those nine years.

Seeing my oldest daughter get her Master’s degree
Seeing my youngest daughter become an ordained minister in the Wesleyan Church
Being able to just “hang out” with my grandsons
Enjoying my “crazy” grandchildren – and seeing two of them happily married
Meeting my first great grandson – and looking forward to seeing the second one.
Getting to watch this youngest granddaughter grow up.

And all the trips we have been able to make:

All across the south loving the old oak trees and the Spanish moss.

Enjoying the beach and the carriage rides.

And out west to Wyoming and Montana following the Pony Express/Mormon Trail.

Being a history nut I have been able to visit many former presidents’ homes and I loved walking the grounds of Fort Laramie.

Seeing the names carved into the rock at Register Cliff.

But most of all, I am so grateful for all the quality and quantity time I have had with my husband, my bff, these past nine years.

Still my bff after nine years of “real” togetherness!

Thank you Lord for your blessings on me!

I Have Hair!!!

Those who follow my blog know that I lost my hair 19 years ago after 16 treatments with three powerful chemo drugs following surgery for breast cancer. Although the doctor assured my hair would come back for years I did not. It was only a few years ago that we found out that one of the drugs I was given could cause permanent hair loss.

I was okay with that – I just wore a wig. No one ever knew it was a wig and were surprised when they found out.

Lately, however, I became tired of the wig. Old age I guess. I also was showing some hair growth – not much – very thin – but hair.

My two daughters encouraged me to take the wig off and see if my hair might grow back. They wondered if the wig might be preventing hair growth

I was scared – but I decided to take the plunge and do it.

My approach to difficulties of life has always been:

with a strong faith in God and a good sense of humor I can handle this.

So – I wrote a couple of blogs trying to make fun of my baldness.

Now – after about three months without the wig – I HAVE HAIR!!!!

It’s pretty thin – but it’s my hair!!!!

As it grew back it was a sloppy unkempt mess. I had to let it get some length before I could get it styled so for a few weeks I was so embarrased to go out in public – but I just remembered my prayer “Give me hair!” and was thankful that God was answering that prayer.

Finally a couple of weeks ago I was able to go to a beauty salon and get it styled. The stylist kept asking me if I wanted to use a curling iron or a blow dryer and how I wanted it styled. . Since it had been 19 years since I had any hair to comb or style, 19 years since I had been to a beauty salon, I put myself in her hands and trusted her to guide me through this.

So once again I have hair. It is not thick – it is not red – but it is my hair! I am getting used to the white/grey and actually beginning to like it.

I am so happy and grateful – I HAVE HAIR!!!

Memories and Potato Soup

October is a month that brings back so many memories to me. It was in this month nineteen years ago that I was diagnosed with a very advanced and aggressive cancer. So it’s natural that I have memories of that time every October – and especially since October is Breast Cancer Awareness month.

Some of those memories are not pleasant. The surgery – the chemo – the radiation – the very hard effort to stare death in the face.

But I also have so many good memories and today brought back one of those memories.

It is raining and chilly here in Michigan today – a perfect fall day. It is also a good day to just stay inside and watch the rain from my easy chair. My husband declared that this was a day for homemade potato soup.

I love homemade potato soup. My mother often made that when I had a cold or was not feeling good. It is my comfort food. My husband makes great potato soup so I was glad to hear his offer to make some for us today.

Watching him prepare the soup and enjoying the good smells coming from the kitchen brought back a very special memory of that time battling cancer.

I continued to work through my chemotherapy and was active but with the first two drugs I was given, I would basically lose a week of life as I felt energy and life drain from my body. I would spend several days in bed too weak to do anything but get up and walk to the restroom. My husband would fix my meals and bring them to me on a tray. If there was any meat, he would even have to cut it up for me because I had energy only enough to lift my fork.

He was so good – so kind – so patient and did all he could to help me through those weeks. One day as I lay in bed I thought how much I would love to have some potato soup. Because he was doing all the shopping, house work as well as cooking and taking care of me I did not want to make any special requests. Not knowing what he had planned to fix, I did not want to impose on him so I said nothing.

I drifted back off to sleep and some time later he woke me up to tell me he was bringing me my lunch. When he brought the tray to my bed, I was so happy. He had fixed potato soup. You may think that was just a coincidence, but I believe God knew my heart’s desire and led my husband to fix that soup.

As we ate the soup today we remembered that special time and we thanked God for how much He cares about us.

And, the soup was delicious – as my husband’s soup always is.

Mountain or Valley – He’s Still There!

Our pastor has been doing a series on Psalm 23 – taking one verse at a time. Today she spoke on one verse that has been such a blessing to me throughout the past almost 20 years. It is the verse that says:

Though I walk through the valley of the shadow of death, I will fear no evil for Thou are with me.

That is the verse that came to my mind the day of my first visit to the oncologist following surgery for breast cancer. His first words to me were “The odds are not in your favor.” Immediately the above verse came to my mind.

I did not know if the Lord was assuring me I would walk through this valley to health and life on the other side or if I would walk through this valley into death.

What was comforting to me was the assurance that He was going to be with me through this time.

Looking back on my life as I near the last years of life I am so thankful to see all the times He has been there for me.

What comfort I find in knowing He will continue to walk with me through the rest of my life – both on the mountain times and the deep valley experiences life may bring.

At this point in my life I would say I’m mostly experiencing those “mountain” times. Last week my husband and I celebrated 37 years of marriage. What a blessing it is to be able to say that he is my bff and our love for one another is deeper and stronger than the day we married. We are blessed with good health for our age and we have a beautiful home to enjoy.

Yet I have been facing some “valley” moments these last few weeks. When I had surgery for cancer the surgeon apologized and said that he had done quite a bit of nerve damage as the lymph nodes were full of cancerous cells and he wanted to make sure he removed all the cancer. That plus the extensive radiation I had has left me with pain ever since. The damage done to my side has, with age, also led to a damaged rotator cuff. Surgeons now do not want to do surgery to repair the cuff because there has been so much nerve damage already done.

For whatever reason – old age I guess – the chronic pain that I have learned to live with has recently become much worse. It is especially difficult when I try to lay down and I have come to dread bedtime.

This morning my church family gathered around me and prayed for me. What an encouragement that was. One young man put some legs on his prayers and offered to come help me with my housework, even to vacuum my floors. My husband is able to help me and I refuse to just sit and give in – got to keep moving. But it was so kind of him to offer. That’s what real love is all about.

How blessed I am – how good to know not only that God is with me – but He has given me friends to love and support me.

Whatever situation dear reader you may be in – let me encourage you to lean on God. He is our Good Shepherd and His promises to be with us in “all” seasons I have found to be true.

Little Miss Vain

For those of you who follow my blog you know I recently stopped wearing a wig after 19 years post cancer and I am trying to get my hair to grow back.

Give Me Hair!!!

I have googled “hair loss” “hair growth” and read all kinds of articles and commercials on products that will help your hair grow thicker. It’s amazing the number of products and claims made to grow hair. If I tried every product on the market, it would cost a fortune.

It took some courage but I have been going out in public without my wig. Of course all my friends tell me I look fine with my thin hair. But what are they doing to do? Say “Barbara, you look terrible, put your wig back on?”

While I don’t have a lot of hair yet what I had was getting scraggly so I made an appointment at the local salon for a hair cut. I imagined my stylist laughing when I walked in and asked for a hair cut. “What hair?”

When the stylist asked me what I wanted – well why not ask for the best????

Realizing that beautiful – magnificent – ravishing might be too much to ask, I suggested just a “clean-up” of the scraggly ends.

Now I’m massaging my head every night (supposed to increase blood circulation to scalp) and using some essential oils. Also taking Biotin although most legitimate sources I read say there is no proof that this will really help.

With all the problems in our world – politics, Covid 19 and vaccines, the economy – I know I am a little vain focusing on my hair – or lack thereof.

The Garden that Love Built

It’s Breast Cancer Month – and every year at this time I remember my own story of the battle with breast cancer. It was in October of 2002 that I discovered a lump in my breast that led to a battle that thankfully, with God’s help, I won. People may get tired of hearing my story, but I will never get tired of being grateful to be alive – now celebrating 18 years cancer free. And a reminder to all my female readers: do a monthly breast exam.

Grandma's Ramblings

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In November 2001 my husband and I moved into our new home.  It had no trees or flowers anywhere on the property. In the backyard, a deck opened onto an above ground swimming pool.  The backyard was ugly and hot with lots of concrete and rock around the pool.  Two metal sheds sat on large slabs of concrete.  My husband, who loves flowers and trees wanted to get rid of the pool.  But I wanted to try to learn to swim so I convinced him to keep the pool for our first summer in the house.

The next summer I was only in the pool three or four times because every evening when I came home from work all I wanted to do was just lie down.  I was constantly exhausted.

In November 2002 we discovered why I was feeling so badly.  After a visit to the doctor and then…

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The Battle is Not Mine!

Life is good for me.  Retired with time to do what I want to do.  Good husband who is my best friend.  Children, grandchildren and even great grandchildren to love.

Still, like all of us, difficult times do come.

Right now I am facing health issues.  I see the doctor tomorrow to review MRI results and I do not know for sure but it appears surgery may be in my future.

The first thing that often happens when faced with difficult circumstances is to start worrying.  Stressing out – trying to figure what is the best thing to do.

Thankfully, God’s Word has always been a source of strength to me and today is no different.

Reading in 2 Chronicles 20 I was reminded of the story of King Jehoshaphat.

Messengers came to him with the news that a vast army of multiple nations was marching against Jerusalem, the capital city.  The scripture says that Jehoshaphat was “terrified” by the news.

But I love what he did.

First, he turned to God and asked for guidance.

Second, he called for the people to begin fasting and seeking God.

Last, he led the people assembled at the Temple in Jerusalem in this amazing prayer of faith.

“O LORD God of our ancestors, you alone are the God who is in heaven….You are powerful and mighty….We are powerless against this mighty army that is about to attack us.  We do not know what to do, but we are looking to you for help.”

He then turned to the people and gave them this message.

“Don’t be discouraged by this mighty army for the battle is not yours, but God’s.”

What is really mind-blowing is his next action.

He appointed singers to march before the army that went out to battle.  They were to sing praises to God as they led the soldiers.

Can you imagine anything so silly?  Can you imagine our president appointing a choir to march into battle before our airplanes, drones and soldiers?

Yet as I have often discovered in my own life, praising God in the middle of problems has often given me victory over my fear, over my despair.

I share that story in this post:  The Day I Let My Pain Go!

So as I head into tomorrow and my doctor’s appointment I go realizing I do not know what to do.  All I have to do is look back at my battle with cancer and remember that God is with me no matter what.  Ultimately, the battle is His.  As He was with me then, He is with me now.

My story of His presence in the middle of radiation is shared here:  Coincidence or An Act of God?

My prayer today is:

God, I don’t know if this only means physical therapy or if I am facing surgery with weeks/months of recovery.  I don’t know if the pain will soon be gone, get better, get worse or last for weeks/months.  But this I do know, as You have always been with me, You are with me in this.  The battle is yours.  I give it to You.  All I ask is that You help me to keep my eyes on You.

 

 

 

 

 

My Cancer Buddy

When I was first diagnosed with breast cancer 17 years ago my oldest daughter bought me a small porcelain doll – a little clown.  All through my treatment the little doll sat on my desk at work smiling at me and encouraging me that I was going to make it through this tough time.

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As I lost my hair during the treatment and it began to come back in grey I really liked that underneath that hat my buddy had grey hair too.

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Although my hair did come back – it never came back thick as it had been before the treatment.  In fact, it is so thin that I have continued to wear a wig because I am almost bald.

At first the idea of having little hair was depressing, but I decided to not dwell on the negative, but find the positive.

Wearing a wig meant no bad hair day.  Think of the hours I save not sitting in a beauty shop.  Financially I was also ahead of the game.  Granted wigs are not cheap – but they are still a better deal than all the money spent on hair cuts.

As I adjusted to the “almost bald” head, one day I accidentally bumped the doll and it fell on its side.  As it did so, the hat came off and I found that my cancer buddy had also gone bald.

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Just like me she had a small amount of hair toward the back of her head but basically she was bald.  Laughing, I discovered the hair had come off in her hat.

Now that I am retired, the doll sits on the desk in my home office.  I keep her hat on so she won’t be embarrassed by her bald head.  But every and now then I take it off and have a good laugh.

 

 

October is Breast Cancer Awareness Month

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You will see lots of pink ribbons this month as October has been designated as Breast Cancer Awareness Month.

In 1979 wife of one of the prisoners held by Iran in the hostage crisis decided to use a yellow ribbon to show support for her husband.  Soon there were hundreds of yellow ribbons displayed around the country to show support for our brave men being held captive.  The history of a yellow ribbon goes back hundred of years.  It is believed that the Puritans brought the story in a song of a women who wears a yellow ribbon to remember her love who has gone away to war.

‘Round her neck she wears a yeller ribbon She wears it in the winter and the summer so they say If you ask her, “Why the decoration?” She’ll say, “It’s fur my lover who is fur, fur away”

Since then many groups have used a colored ribbon to bring awareness to their own cause.

  • Red ribbon – AIDS awareness and for heart disease
  • Orange ribbon – leukemia awareness
  • Green ribbon – mental illness awareness
  • Purple ribbon – Alzheimer’s awareness

And the list goes on and on.

Breast cancer is something all women should be aware of.  Men can also get this disease but they count for only a small percentage of all cancer cases.

As a cancer survivor I encourage all women to do all they can to prevent this disease.  Some important things to consider:

  • Maintain a healthy weight
  • Stay physically active
  • Eat fruits and vegetables
  • Do not smoke
  • Limit alcohol consumption

I also strongly recommend a monthly self-exam.  John Hopkins Medical Center states:

“Forty percent of diagnosed breast cancers are detected by women who feel a lump, so establishing a regular breast self-exam is very important.”

This is how I discovered my cancer.

If you discover a lump or are told you have breast cancer, please do not panic.  If discovered in the early stages, survival rates are usually 100%.  Even in later stages, treatment keeps advancing and survival rates keep going up.

For me my diagnosis was not good.  I was told without any further treatment after surgery, I had only a 15% chance of being alive in ten years.  With a vigorous treatment of chemotherapy and radiation, my survival rate went up to 25%.  But here I am 17 years later cancer free.

As my husband said when we received the terrible diagnosis:

“It is not over until God says it is over.”

Another cancer survivor whose diagnosis was worse than mine but who survived for years told me:

Don’t worry about the statistics.  That is all they are – numbers.  Make your own statistic.

But do your self-exam monthly!!!!